In Novosibirsk, the court ordered the Ministry of health NSO immediately to treat ill 5-month-old girl Sophia Darbinyan with a diagnosis of “spinal muscular atrophy” (SMA).
the Parents filed a suit after the health Ministry told the parents that the budget now has no money for medication for a child. Sofia needs the drug “Noninert” (“Spinoza”), one dose of which is 8 million rubles. In the first year of a child’s life should be about 48 million on the drug. Subsequently, the health Ministry said that found money to buy three vials of the drug, although for the next course requires four.